Cochrane, AB, Canada
This struggle is for his life, not just a better future... simply for a future.
Edin Adyuri Inocente Aguilar (or "Eddy" as he was known to the 3CM sponsors) was one of the original 8 boys that joined the Moses Project back in January, 2007. He was the smallest of the group in stature and since the first day has proven that his heart is many times larger than his body.
Yesterday, Saturday, I was so proud of myself for having spent the day catching up on accounting records so that I can file my taxes. I was wrong! I should have spent the day searching for help for Ayurin.
When I visited the project in October, Ayurin was recovering from Hepatitis. Then he ended up back in the hospital over Christmas and after a transfusion and some nutrient IV's was sent back to the project. He was readmitted a couple weeks ago in very rough shape and Raul finally arranged for him to see a blood specialist in San Pedro Sula last week. The diagnosis is Severe Aplastic Anemia. This a condition where your bone marrow doesn't produce enough blood for your system. It is rare... +/-1 per 440,000 each year in the United States and even rarer in Latin America. The diagnosing doctor stated that unless he can get a bone marrow transplant, his days are very limited. The local public hospital won't even re-admit him as they say there is nothing they can do for him.
Ayurin is an All Star! This young man left home when he barely turned 14 and went through 3 years of a brutal schedule to learn carpentry, welding, electricity, wood carving, furniture making, organic farming, animal husbrandy - all while obtaining his junior high at night school. I don't ever recall hearing Ayurin complain. Being small - he displayed the Napoleon Complex of working harder than everybody else to show he could keep up.
Ayurin has put on training sessions back at his father's little plot of land in their village - passing on what he's learned about sustainable farming. He has also helped us by staying on as one of two grads selected to help us manage the project farm and provide counselling for the boys in the program. He hasn't lightened his schedule - he continued to go to night school (but paying his own way now from his wages) until he graduated from high school. Then he enrolled in the ag tech program at the local campus of the national university. Three months ago, he finally got engaged.
Help! Who can direct us to a foundation, medical or otherwise, to whom we can appeal to help us save his life? Who has a contact that we can approach directly rather than emailing blind? One better - who can approach such a contact directly and be our quarterback on this one? I'm out of my league on this one and it's driving me nuts. Some of the prescribed medicines are not available in Honduras, but the treatment we can obtain in Honduras costs about $1,000 per month - and that's not staying in a hospital. It does, however, give us a little bit of time to find a solution.
I'm going to see him in two weeks. I can give him blood at that time - but the benefit that provides is very temporary. If my bone marrow works for him, he's welcome to that as well. But I don't have the resources to get it from me to him. We need help. Further information on his disease can be found at http://www.aamds.org/about/aplastic-anemia.